Side Tracked by Chronic Illness Part One

I was in two minds in presenting the next topic because I wanted this blog to be about art only.  However, recent events have affected art making.   I have learned much about my experience and it is my hope that the information might help someone or at least let sufferers know they are not alone.

In a nutshell - I've been sick with a chronic disorder.  It has been given a variety of names.
1.  Rheumatoid arthritis
2.  Polymyalgia rheumatica
3.  Fibromyalgia
4.  Chronic Fatigue Syndrome

The acute phase began November 21, 2016.  I woke up with severe pain on the bottom left side of my abdomen.  I went to see my internal medicine doctor  (IMD) and he told me to go the emergency room immediately.  So I went and had blood tests and a CT scan.  Diagnosis = diverticulitis.  I was given antibiotics and sent home.  The pain subsided quickly and I got better.  It was the week of Thanksgiving and I was able to cook our annual family dinner without too much difficulty.

Two weeks later, on December 5, 2016, I started having a difficult time breathing.  I couldn't take in adequate amounts of air without my chest hurting.  So, again, I went to see my IMD  and he told me to go to the emergency room immediately.  So I did, had blood tests, EKG, and slightly different CT scan.  Diagnosis = pleurisy.  I was given strong anti-inflammatory drugs (ketorolac and only 8 pills) and sent home. I asked the ER doctors if there might any connections between the diverticulitis and pleurisy and they responded that they didn't know.  I got better and within a week, I was back to taking dance classes.

About one month later, (January 4, 2017), I went to see my dermatologist and I mentioned that I had been to the ER with the diagnosis of pleurisy and was on this wonderful anti-inflammatory drug.  The drug not only made my skin look amazing, it got rid of the pain in my joints that i didn't realize i had until they went away.  "Ha ha ha" was my attitude.  My dermatologist became rather serious and suggested that I be tested for rheumatoid arthritis.  In other words, I didn't know I had a problem until it went away.  That news did not make me happy. I knew rheumatoid arthritis was an auto immune disease whereby the body attacks itself.  I made an appointment with my IMD  and got books from the library in addition to doing searches on the Internet.  I wanted to make sure I was prepared with questions and to know what tests I needed.

Results and his diagnosis =  general inflammation but not rheumatoid arthritis. After one week of being gluten-free, my body felt better. I re-introduced dairy and corn and did not suffer from these foods)    I felt good enough to fly to Washington DC to attend the  Women's March on Washington.

Sometime in February,  I began suffering from fatigue, depression and brain fog.  Even though I slept 8 hours most nights, I never felt rested.  I felt like I would never be cheerful again.  Doing the simplest things felt insurmountable.  And, I still had pain throughout my body.  I started getting migraines which I used to get in my 30s but thanks to acupuncture, stopped getting them.   I still went to the studio but I wasn't very productive.  I did painting exercises just to "keep in shape" but I didn't know where I was going.  I don't like being in that state of floundering.

At this point, my 4-5 dance classes a week became 1-2 dance classes a week.  I felt tired and weak.

On a overnight spa getaway with a friend (February 22) , I began having pain in my mouth.  It turned out to be an infection and my face swelled up and it was painful.  I went to see an endodontist and after clean up and a root canal, I was pain-free.  I mention this because I have to believe, there is some connection to all the other symptoms.  Just like there has to be a connection between the diverticulitis and pleurisy.

My IMD and I decided on staying gluten-free and to have my blood re-tested in 2 months.

Some additional background problems:  I have had occasional flare-ups of GERD (gastroesophageal reflux disease).   I have what I call "fever spikes" where I feel like i am coming down with the flu but it lasts only one day.  It is debilitating enough where i am confined to bedrest and take ibuprofen.  I have suffered from a systemic yeast infection due to overuse of antibiotics.  And that was related to my "leaky gut" which diet modifications, probiotics and a series of colonics helped immensely.  Both the leaky gut and yeast infection have been taken care of.

Next, alternative treatments.

Comments

Unknown saidā€¦
You are beautiful and mighty!
Matt saidā€¦
Thanks for sharing this deeply personal news. Keep fighting!
lucy junus saidā€¦
You are so kind & brave to share your story with us.
Love you for it.
Leslie Crawford saidā€¦
Thank you for sharing this. As your neighbor and a friend, I am happy to help in any way I can. Certainly, I'll keep bringing you egg!
Anonymous saidā€¦
Thanks for sharing and continue researching -- the body is connected and I agree with you that these symptoms must be linked.

I've had a hamstring tear in my left leg since Feb 2017 that was as a result of an injured SI joint
on the right side and my body being unbalanced for a long time. Who knew??
meekinthewest saidā€¦
We'll get you better mama. Hang in there. So much love to you!

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